Natural disorders, This Little Girl Can not Feel Warm Hugs Mother,. Phoebe Crowson five-year-old girl can not feel the warm embrace of the mother. Because, Phoebe suffered a rare skin disease, recessive dystrophic epidermolysis bullosa named (EB). Abnormalities that makes Phoebe skin layers vulnerable to grit. In fact, the arms of his mother could make her pain.
"I can not give good hugs, you have to be so gentle when you hug him or pressure and friction will peel the skin," said Zoe, 37, Mrs. Phoebe as quoted from Mirror.co.uk, Monday (03/16/2015)
"That's the worst part for me, a mother should be able to hug their children, but if I did, I could cause serious injury," he added.
Phoebe skin as fragile as a butterfly's wings. She always cries when going to change clothes. Even if his eyes just fine dust can cause temporary blindness. At night, she had to sleep with a pillow case made from silk to protect the skin so as not to tear.
Zoe revealed that every day he always told her to slow down. "He still did not fully understand the consequences of what he is doing is risky. He ran to the corner of my bed recently and hurt his knee. Soon the skin blisters and peeling," said Zoe.
When Zoe and her daughter were outside, Zoe always reminded to anyone for not carrying his daughter. Therefore, it can injure the skin of his daughter.
"He even had a special toothbrush for brushing teeth will usually cause blisters in the mouth," said Zoe.
Bruising and bleeding is normal for Phoebe. Because of his illness, Phoebe could not play like normal children another. Almost no activity to do Phoebe, she had tried ballet movement that promotes softness. Still, he could not, even Phoebe felt desperate for a normal life like her friends.
"More recently he said to me, 'Mom, why my skin is different?'. It destroys the liver, and is not fair at all," complained Zoe.
Zoe had brought her daughter to the hospital. But the doctor said that currently there is no cure for Phoebe. Zoe was devastated, but he still did not get discouraged.
Zoe has now set up a charity in the name of his daughter The Phoebe Research Fund last month and is trying to raise money so that more research can be done on the condition of his daughter.
"So I set the Phoebe Research Fund last month. I want to earn a lot of money and support to find out why so that we can invest in finding a cure," please Zoe.
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